GET CONNECTED PATIENT POWERED REGISTRY

Owners

Goods & Services

Maintaining a registry of national and international databases in the field of Sickle Cell Disease; Maintaining a registry of information about Sickle Cell Disease; Patient relationship management services; Promoting collaboration within the scientific, research and provider communities to achieve advances in the field of Sickle Cell Disease; Promoting public awareness of Sickle Cell Disease; Promoting public awareness of Sickle Cell Disease by means of public advocacy; Promoting the exchange of information and resources within the scientific research and medical communities to achieve advances in the field of healthcare; Providing consumer information and related news in the field of Sickle Cell Disease; Providing on-line referrals in the field of Sickle Cell Disease; Providing an on-line computer database featuring trade information in the field of Sickle Cell Disease