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Owner

Goods & Services

promoting public awareness of Lysosomal Acid Lipase deficiency; providing information on Lysosomal Acid Lipase deficiency, research, prevention, treatments, and patient care services; providing information on rare, terminal and genetic diseases research, prevention, treatments, and patient care services; providing a web site featuring information on Lysosomal Acid Lipase deficiency, research, prevention, treatments, and patient care services; providing a web site featuring information on rare, terminal and genetic diseases research, prevention, treatments, and patient care services; providing a website featuring information regarding events promoting public awareness of Lysosomal Acid Lipase deficiency; providing information regarding medical treatment of diseases; providing information regarding medical treatment of Lysosomal Acid Lipase deficiency; providing support services for patients and families of patients with Lysosomal Acid Lipase Deficiency, namely, companionship, help with medical forms, help with insurance claims and forms, emotional counseling and emotional support

education services, namely, conducting classes, conferences, lectures, seminars, workshops, and continuing medical education courses, in person, via the internet, or via webinar, in the field of medicine and healthcare; education services, namely conducting classes, conferences, lectures, seminars, workshops, and continuing medical education courses and workshops for medical professionals, in person, via the internet, or via webinar, in the field of Lysosomal Acid Lipase deficiency; electronic publications, namely books, newsletters, brochures, booklets, journal articles, academic publications, case studies, posters, educational course materials and handouts, reference guides, and teaching materials in the field of Lysosomal Acid Lipase deficiency

pharmaceuticals and pharmaceutical preparations for rare, terminal and genetic diseases; pharmaceuticals and pharmaceutical preparations for dyslipidemia, hepatic steatosis, liver disease, adrenal enlargement, adrenal calcification, growth retardation, and hepatic fibrosis; pharmaceuticals and pharmaceutical preparations for the treatment of enzyme deficiencies; pharmaceuticals and pharmaceutical preparations for the treatment of lysosomal storage diseases; pharmaceuticals and pharmaceutical preparations for the treatment of Liposomal Acid Lipase deficiency

printed matter, namely books, newsletters, brochures, booklets, journal articles, academic publications, case studies, posters, educational course materials and handouts, reference guides, and teaching materials in the field of Lysosomal Acid Lipase deficiency