MYHRE SYNDROME FOUNDATION

Owners

Goods & Services

Education services, namely, providing in-person and virtual classes, conferences, seminars, webinars, workshops, and training for parents and other family members of patients, medical professionals, and other individuals in the field of Myhre Syndrome; Providing a website featuring blogs and non-downloadable publications in the nature of articles in the field(s) of Myhre Syndrome; Providing online non-downloadable videos in the field of Myhre Syndrome

Charitable services, namely, promoting public awareness of Myhre Syndrome; On-line retail store services featuring clothing, coffee mugs, and bags; Promoting public interest and awareness of Myhre Syndrome; Promoting the interests of persons with Myhre Syndrome and their families by means of public advocacy

Accepting and administering monetary charitable contributions for medical research; Accepting and administering monetary charitable contributions for establishing and maintaining a registry of patients with Myhre Syndrome; Accepting and administering monetary charitable contributions for establishing and maintaining biorepository of biological samples and health information for use in research in the field of Myhre Syndrome; Charitable foundation services, namely, providing financial support to medical research institutions for engaging in medical research in the field of Myhre Syndrome; Charitable fundraising services; Charitable fundraising services by means of organizing and conducting special events; Charitable fundraising services for promoting research, education and other activities relating to Myhre Syndrome; Providing grants for research in the field of Myhre Syndrome