MYOTONIC DYSTROPHY FOUNDATION

Owners

Goods & Services

Educational services, namely, providing on-line non-downloadable educational materials in the nature of guides in the field of myotonic dystrophy; providing resources, namely, providing a website featuring toolkits consisting primarily of non-downloadable newsletters, instructional videos in the field of myotonic dystrophy, financing medical research, charitable fundraising; educational services, namely, conducting conferences, informational mini-conferences, and non-downloadable webinars in the field of myotonic dystrophy, disease symptom management, disease information; providing on-line non-downloadable peer-reviewed and published articles, scientific papers featuring clinical care recommendations in the field of myotonic dystrophy; providing non-downloadable electronic publications in the nature of journal articles and guides in the financial field; educational services, namely, providing non-downloadable webinars in the field of myotonic dystrophy

Charitable fundraising for myotonic dystrophy research; online charitable fundraising for myotonic dystrophy; providing fundraising information regarding myotonic dystrophy; charitable fundraising services for promoting research, education and other activities related to myotonic dystrophy; financing medical research of others for myotonic dystrophy; accepting monetary charitable contributions to fund medical research for myotonic dystrophy

Providing personal support services for patients and families of patients with myotonic dystrophy, namely, emotional counseling and emotional support via phone support and onsite and virtual support group meetings; on-line social networking for fostering community building for those with myotonic dystrophy to lessen isolation