NBSTRN NEWBORN SCREENING TRANSLATIONAL RESEARCH NETWORK

Owner

Goods & Services

Providing temporary use of web-based software application for the collection and reporting of newborn genetic screening data to be used for study, medical treatment, development of clinical histories and development of new treatments

Promoting the exchange of information and resources within the scientific research and medical communities to achieve advances in newborn genetic screening; providing a web site featuring technology enabling scientists and physicians to access resources in clinical medicine; providing study planning consultation services to investigators, scientists and physicians in connection with establishing controls, sampling, measuring, budgeting, clinical trial organization, selection of statistical methods, statistical modeling, and interpretation of genetic research results

Providing medical profiles and medical record analysis and assessments via a website that is designed to provide resources for newborn screening programs to evaluate the success of screening programs and to provide recommendations on next generation treatment options for genetic disorders; health care services, namely, providing a database in the field of newborn genetic screening and featuring inputting and collection of data and information all for treatment and diagnostic purposes