RARE DISEASE DAY

Owners

Goods & Services

Charitable fund raising, in particular, fund raising to promote and support scientific and clinical research, development of treatments, dissemination and harnessing of knowledge, raising of public awareness and improvement of the quality of patients' lives, in the field of rare diseases

[ Education in the field of rare diseases, namely, providing classes in the field of rare diseases; ] training in the field of rare diseases, namely, providing seminars in the field of rare diseases; [ ongoing shows featuring comedy, news, music concerts, beauty contests, drama performances, ballet performances and fashion shows broadcast over television, radio and the internet, all for the purpose of find raising to promote and support scientific and clinical research, development of treatments, dissemination and harnessing of knowledge, raising of public awareness and improvement of the quality of patients' lives, in the field of rare diseases; ] sporting and cultural activities for the purpose of fund raising to promote and support scientific and clinical research, development of treatments, dissemination and harnessing of knowledge, raising of public awareness and improvement of the quality of patients' lives, in the field of rare diseases, namely, organization of colloquiums, conferences, and seminars in the field of rare diseases; [ organization of charity dance contests, and sport competitions, namely, crew, badminton, basket ball, boxing, canoeing, cycling, horse riding, fencing, soccer, gymnastics, weightlifting, handball, hockey, judo, wrestling, swimming, pentathlon, taekwondo, tennis, table tennis, rowing, shooting, archery, triathlon, sailing, volley ball, biathlon, bob-sledding, curling, ice hockey, luge, ice skating, skiing, tug-of-war, rugby, polo, and golf all for the purpose of fund raising to promote and support scientific and clinical research, development of treatments, dissemination and harnessing of knowledge, raising of public awareness and improvement of the quality of patients' lives, in the field of rare diseases; ] arranging and conducting conferences, colloquiums, seminars and symposiums to raise public awareness, in particular that of national and international institutions, in the field of rare diseases; [ publication of books concerning rare diseases; ] publication of texts concerning rare diseases [ ongoing radio and television programs for the purpose of fund raising to promote and support scientific and clinical research, development of treatments, dissemination and harnessing of knowledge, raising of public awareness and improvement of the quality of patients' lives, in the field of rare diseases; production of radio and television programs concerning rare diseases; education, training and instruction in the field of rare diseases, namely, providing workshops in the field of rare diseases ]