SEE RARE

Owner

Goods & Services

Providing a website featuring information in the field of the diagnosis and treatment of rare diseases; Providing information in the field of the diagnosis and treatment of rare diseases via a website

Promoting awareness of rare diseases; Promoting public awareness of rare diseases by means of public advocacy; Promoting public awareness of the need for improved diagnosis, research, and access to treatment for rare diseases; Promoting the interests of patients with rare diseases and their families by means of of public advocacy; Promoting collaboration within the scientific, research and provider communities to achieve advances in the field of rare diseases; Administration and management of research grants; Association services, namely, promoting public awareness of rare diseases; Association services, namely, promoting the interests of individuals affected by rare diseases; Charitable services, namely, promoting public awareness of rare diseases

Downloadable printable educational materials in the field of rare diseases; Downloadable electronic publications in the nature of news articles, op-eds, and resource guides in the field of rare diseases

Providing online non-downloadable news articles in the field of rare diseases and rare disease research; Education services, namely, providing live and on-line seminars in the field of rare diseases and rare disease research; Providing online non-downloadable publications in the nature of instructional materials in the field of rare diseases via a website

Charitable fundraising services; Charitable fundraising services by means of organizing and conducting fundraising events to promote rare disease awareness and research; Charitable fundraising services by means of organizing and conducting special events; Charitable fundraising services for promoting research, education and other activities relating to rare diseases research, diagnostics, and treatment development; Charitable fundraising services for rare disease causes; Charitable services in the nature of providing grants for for medical research and patient support in the field of rare diseases; Charitable services, namely, fundraising services by means of organizing special events for patients with rare diseases and rare disease research; Fund raising services for charitable purposes; Philanthropic services, namely, financial endowment of rare disease treatment, diagnostics, and healthcare infrastructure programs; Accepting and administering monetary charitable contributions to fund medical research